info4carers.com
info4carers.com - Disability & Chronic Illness
http://www.info4carers.com/index.php/resource-directory/disabilityachronicillnessspecific.html
You Are Not Alone. EBook Interactive You Are Not Alone. EBook You Are Not Alone. In Their Own Words. Did you know about? Disability and Chronic Illness. Disability and Chronic Illness. Disability Chronic Illness Specific. Published on Thursday, 21 July 2011 17:26. Written by David Marler. 1p36 Deletion Support and Awareness. Website: www.1p36dsa.org. Website: www.aeiou.org.au. Acquired Brain Injury Outreach Service. Website: www.health.qld.gov.au/abios. Alzheimer's Association Of Queensland. Website: www...
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: October 2009
http://lexislifewith1p36.blogspot.com/2009_10_01_archive.html
Lexi's Life with 1p36. Oct 14, 2009. A lot has happened since my last post. Alexis has started school in a new classroom with a new teacher. So far so good. We have been meeting with Family and Children Services to see what resources are available to Alexis. We have had a prescription written for Alexis' overnight incontinence needs. We have yet to receive them. Alexis has a new brother. He was born on September 2. See our family blog. Subscribe to: Posts (Atom). In her element - catching flakes.
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: June 2010
http://lexislifewith1p36.blogspot.com/2010_06_01_archive.html
Lexi's Life with 1p36. Jun 24, 2010. Bathing has been made a lot easier. Eating isn't so messy. She just seems to still not want to use her arm. We will have to work on that. Jun 22, 2010. Alexis had her second outing with her worker (I don't remember the official title). She took Alexis out to the Humane Society. While there they worked on Alexis not talking to strangers and not touching other people. Alexis had a good time. She bugged me all morning until it was time for her to go. Jun 21, 2010. The su...
kaylee1p36miracle.blogspot.com
Our Precious 1p36 Miracle: Christmas Bliss....Serenity!
http://kaylee1p36miracle.blogspot.com/2009/12/christmas-blissserenity.html
Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Sunday, December 27, 2009. To my wife,. Everything is meant for a reason. God had a plan for us from day one. For us to meet and have the children we have...The s...
lexislifewith1p36.blogspot.com
Lexi's Life with 1p36: November 2009
http://lexislifewith1p36.blogspot.com/2009_11_01_archive.html
Lexi's Life with 1p36. Nov 20, 2009. Alexis loves her siblings. Here is a moment with Mikey before Halloween. Labels: Lexi and Mikey. Nov 6, 2009. Alexis loves music. Her favorite soundtrack is Disney's Cinderella. We always get the play by play on what part of the movie the music is playing. It always makes her giggle. Music brings her great joy. Most times music will bring peace into our home. I have found that when I play quiet peaceful music, Alexis becomes more calm. Subscribe to: Posts (Atom).
growing-up-aiden.blogspot.com
Growing Up Aiden: February 2011
http://growing-up-aiden.blogspot.com/2011_02_01_archive.html
Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus but the windows were ope...We had tw...
kaylee1p36miracle.blogspot.com
Our Precious 1p36 Miracle: December 2009
http://kaylee1p36miracle.blogspot.com/2009_12_01_archive.html
Our Precious 1p36 Miracle. This site is devoted to Kaylee and her heroic battle against Monosomy 1p36 Deletion Syndrome. Will you join us in prayer for our precious girl? She's the light of our lives and the most brave person we know. We live a chaotic, often hectic existence these days, but we know that if ANYONE can beat the odds, Kaylee CAN! Thursday, December 31, 2009. Happy New Years 2010! Thursday, December 31, 2009. Sunday, December 27, 2009. To my wife,. This is what you were put on earth for....
growing-up-aiden.blogspot.com
Growing Up Aiden: February 2010
http://growing-up-aiden.blogspot.com/2010_02_01_archive.html
Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Saturday, February 13, 2010. Wednesday, February 10, 2010. Children with 1p36 Deletion Syndrome usual learn to use the potty later than other children if they learn at all. We bought Aiden an Elmo potty when he was 18 months old just to introduce him to it. Saturday, February 6, 2010. Subscribe to: Posts (Atom).
phnx1p36tru.blogspot.com
The Ins and Outs of 1p36 parenting: January 2010
http://phnx1p36tru.blogspot.com/2010_01_01_archive.html
The Ins and Outs of 1p36 parenting. The life of Tru as told by her mother and her mothers trials to help others like her. Monday, January 4, 2010. It's been so long since I've posted, so I apologize in advance for the long post. So many great things have happened since the last post. Tru. Is thriving in school. Her concentration is starting to really improve. She'll sit down for a task and complete it, even if it takes 20 minutes! My Personal Christmas Wish WAS Granted. I couldn't think of a better Chris...
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