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Pompe | Australian Pompe's Association

Cart: £0.00. Diet & Exercise. Subsidy places lifesaving treatment within reach. The Australian Pompe’s Association is dedicated to supporting the needs of Australian Pompe patients, their families and Carers. Community support and awareness is vital to our small group of just thirty Australians suffering from Pompe disease. All donations are greatly appreciated. Cheques made payable to Australian Pompe’s Association Inc. can be mailed our treasurer. No products in the cart.

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CONTACTS AT AUSTRALIANPOMPE.COM

Australian Pompe's Association Inc

Raymond Saich

3 Ma●●●● Ave

Kel●●●lle , NSW, 2155

au

61.2●●●●2842
rs●●●●@bigpond.net.au

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Australian Pompe's Association Inc

Raymond Saich

3 Ma●●●● Ave

Kel●●●lle , NSW, 2155

au

61.2●●●●2842
rs●●●●@bigpond.net.au

View this contact

Australian Pompe's Association Inc

Raymond Saich

3 Ma●●●● Ave

Kel●●●lle , NSW, 2155

au

61.2●●●●2842
rs●●●●@bigpond.net.au

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Cart: £0.00. Diet & Exercise. Subsidy places lifesaving treatment within reach. The Australian Pompe’s Association is dedicated to supporting the needs of Australian Pompe patients, their families and Carers. Community support and awareness is vital to our small group of just thirty Australians suffering from Pompe disease. All donations are greatly appreciated. Cheques made payable to Australian Pompe’s Association Inc. can be mailed our treasurer. No products in the cart.
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Pompe | Australian Pompe's Association | australianpompe.com Reviews

https://australianpompe.com

Cart: £0.00. Diet & Exercise. Subsidy places lifesaving treatment within reach. The Australian Pompe’s Association is dedicated to supporting the needs of Australian Pompe patients, their families and Carers. Community support and awareness is vital to our small group of just thirty Australians suffering from Pompe disease. All donations are greatly appreciated. Cheques made payable to Australian Pompe’s Association Inc. can be mailed our treasurer. No products in the cart.

INTERNAL PAGES

australianpompe.com australianpompe.com
1

Pompe | About Pompe

http://australianpompe.com/pompe-disease

Diet & Exercise. Pompe Newborn Screening Request. Press Release: Government approves lifesaving treatment. Press Release: Children to Receive Treatment. Pompe’s Disease can present itself at any age from birth to older adults, its severity often dependingon the age of onset, and level of enzyme activity. No products in the basket.

2

Pompe | About The APA

http://australianpompe.com/the-apa

Diet & Exercise. Pompe Newborn Screening Request. Press Release: Government approves lifesaving treatment. Press Release: Children to Receive Treatment. Our Patron is Professor John Hopwood, Director of the Lysosomal Diseases Research Unit (LDRU), South Australian Health and Medical Research Institute (SAHMRI), Adelaide. Inaugural President Australian Pompe’s Association. No products in the basket.

3

Pompe | February 2015 APA Media Release: Children to Receive Treatment

http://australianpompe.com/february-2015-apa-media-release-children-to-receive-treatment

Diet & Exercise. Pompe Newborn Screening Request. Press Release: Government approves lifesaving treatment. Press Release: Children to Receive Treatment. February 2015 APA Media Release: Children to Receive Treatment. No products in the basket.

4

Pompe | APA 2014 Forum

http://australianpompe.com/news-and-events/apa-2014-patient-family-suport-forum

Diet & Exercise. Pompe Newborn Screening Request. Press Release: Government approves lifesaving treatment. Press Release: Children to Receive Treatment. APA Patient and Family. Support Forum 2014 –. Melbourne Town Hall &. The Australian Pompe’s Association inaugural Patient and Family Support Forum. Bringing Australian members together for the first time. No products in the basket.

5

Pompe | Diet & Exercise

http://australianpompe.com/pompe-disease/diet-exercise

Diet & Exercise. Pompe Newborn Screening Request. Press Release: Government approves lifesaving treatment. Press Release: Children to Receive Treatment. Diet & Exercise. Diet & Exercise. It’s a good idea for Pompe patients to follow a sensible, high-protein / low-carbohydrate diet, to ensure that our bodies do not have extra problems to cope with, due to poor nutrition. Healthy eating and regular exercise, along with treatment, are important for Pompe patients. If you don’t use it you will lose it! Light...

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LINKS TO THIS WEBSITE

pompecanada.com pompecanada.com

Links - Canadian Association of Pompe

http://www.pompecanada.com/links

AMDA - Acid Maltase Deficiency Association. Australian Pompe's Association. IPA - International Pompe Association. New Zealand Pompe Network. Other Patient and Advocacy Groups. AGSD - The Association for Glycogen Storage Disease. ASGD - The Association for Glycogen Storage Disease UK. CORD - Canadian Organization for Rare Disorders. CFA - Canadian Fabry Association. NORD - National Organization for Rare Disorders. Regroupement québécois des maladies orphelines. Starlight Children's Foundation.

worldpompe.org worldpompe.org

Int*l Pompe Day

http://www.worldpompe.org/index.php/international-pompe-day

IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! There are several ways that you can participate:. Upload a photo to the International Pompe Day website. Participate in the International Pompe Day Art Contest! Created: 14 April 2016.

audentespatientadvocacy.com audentespatientadvocacy.com

General Resources - Audentes Advocacy

http://audentespatientadvocacy.com/about/resources

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Courageous Patients. Bold Effort. European Organization for Rare Diseases (EURORDIS). National Organization for Rare Disorders (NORD). National Society of Genetic Counselors. NIH Genetic and Rare Diseases Information Center. National Institute of Neurological Disorders and Stroke, NIH. Online Mendelian Inheritance in Man (OMIM). Congenital Muscle Disease International Registry (CMDIR).

audentespatientadvocacy.com audentespatientadvocacy.com

Pompe - Audentes Advocacy

http://audentespatientadvocacy.com/about/pompe

Sign Up for Updates. Be included in our updates. Subscribe for updates, including new stories. Pompe disease is caused by lack of an enzyme (a kind of protein) in the body called acid alpha glucosidase (GAA) that is necessary for the breakdown of glycogen (a type of carbohydrate) within the cell (2). Without being broken down, glycogen accumulates in certain organs and tissues, especially muscles, and impairs their ability to function normally. There are many autosomal recessive diseases, including pheny...

amda-pompe.org amda-pompe.org

AMDA - Acid Maltase Deficiency Association

http://www.amda-pompe.org/index.php/main/links

The Official Website of the Acid Maltase Deficiency Association. It is difficult to say what is impossible for the dreams of yesterday are the hopes of today and the reality of tomorrow. - Robert H. Goddard. The International Pompe Association (IPA) is a coalition of Pompe organizations from across the world. Association for Glycogen Storage Disease UK. The Pompe Organization that is based in the United Kingdom. VSN- Vereniging Spierziekten Nederland. The Dutch Organization for Pompe's Disease. This foun...

gsnv.org.au gsnv.org.au

Genetic Support Network Victoria (GSNV) - Support Groups - Support Groups

http://gsnv.org.au/support-groups/support-groups.aspx

Genetic Support Network Victoria (GSNV). Find a Genetics Service. Support services for young people. 2016 Annual General Meeting. Our Vision and Mission. Find a genetics clinic or support service. Further information and resources. Resources for parents and families. Cant Find a Group? Genetics in Family Medicine. Taking Part in Research. Genetics in the Media. Cant Find a Group? Support Group / Individual. 4P Aussie Kidz - Helping children with Wolf Hirschhorn Syndrome. Albinism Fellowship of Australia.

worldpompe.net worldpompe.net

Int*l Pompe Day

http://www.worldpompe.net/index.php/international-pompe-day

IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! There are several ways that you can participate:. Upload a photo to the International Pompe Day website. Participate in the International Pompe Day Art Contest! Created: 14 April 2016.

worldpompe.info worldpompe.info

Int*l Pompe Day

http://www.worldpompe.info/index.php/international-pompe-day

IPA Board, Advisors and More. IPA Members and Contacts. IPA Reviews and Reports. IPD Gallery 2016 (Uploads). IPD Gallery 2015 (Uploads). IPD Gallery 2014 (Uploads). Funds For Children In Need. The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual International Pompe Day! There are several ways that you can participate:. Upload a photo to the International Pompe Day website. Participate in the International Pompe Day Art Contest! Created: 14 April 2016.

gsnv.org.au gsnv.org.au

Genetic Support Network Victoria (GSNV) - Support Groups

http://gsnv.org.au/support-groups.aspx

Genetic Support Network Victoria (GSNV). Find a Genetics Service. Support services for young people. 2016 Annual General Meeting. Our Vision and Mission. Find a genetics clinic or support service. Further information and resources. Resources for parents and families. Cant Find a Group? Genetics in Family Medicine. Taking Part in Research. Genetics in the Media. Cant Find a Group? Support Group / Individual. 4P Aussie Kidz - Helping children with Wolf Hirschhorn Syndrome. Albinism Fellowship of Australia.

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Pompe | Australian Pompe's Association

Cart: £0.00. Diet & Exercise. Subsidy places lifesaving treatment within reach. The Australian Pompe’s Association is dedicated to supporting the needs of Australian Pompe patients, their families and Carers. Community support and awareness is vital to our small group of just thirty Australians suffering from Pompe disease. All donations are greatly appreciated. Cheques made payable to Australian Pompe’s Association Inc. can be mailed our treasurer. No products in the cart.

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