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The Diagnosis and Management of Duchenne Muscular Dystrophy

ע ב ר ית Hebrew. When to suspect DMD. Confirming the diagnosis of DMD. Why genetic confirmation is important. What assessments should be done and why. Drug treatments for muscle symptoms. The different steroid regimes. Doses for starting and maintaining steroids. Management of steroid medication. Other drugs and dietary supplements. Physiotherapy and occupational therapy. Management of muscle extensibility and joint contractures. Wheelchairs, seating and other equipment. Help with bone and joint problems.

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The Diagnosis and Management of Duchenne Muscular Dystrophy | dmd-guide.org Reviews

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ע ב ר ית Hebrew. When to suspect DMD. Confirming the diagnosis of DMD. Why genetic confirmation is important. What assessments should be done and why. Drug treatments for muscle symptoms. The different steroid regimes. Doses for starting and maintaining steroids. Management of steroid medication. Other drugs and dietary supplements. Physiotherapy and occupational therapy. Management of muscle extensibility and joint contractures. Wheelchairs, seating and other equipment. Help with bone and joint problems.

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The Diagnosis and Management of Duchenne Muscular Dystrophy | dmd-guide.org Reviews

https://dmd-guide.org

ע ב ר ית Hebrew. When to suspect DMD. Confirming the diagnosis of DMD. Why genetic confirmation is important. What assessments should be done and why. Drug treatments for muscle symptoms. The different steroid regimes. Doses for starting and maintaining steroids. Management of steroid medication. Other drugs and dietary supplements. Physiotherapy and occupational therapy. Management of muscle extensibility and joint contractures. Wheelchairs, seating and other equipment. Help with bone and joint problems.

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ע ב ר ית Hebrew. Ранняя стадия - больной способен ходить. Поздняя стадия - больной способен ходить. Ранняя стадия - больной не способен ходить. Позднняя стадия - больной не способен ходить. Внимание при установке диагноза. Когда возникают подозрения на МДД. В чем важность генетического подтверждения. Какое обследование нужно пройти и почему. Медикаментозное лечение мышечной дистрофии Дюшенна. Схемы применения различных стероидов. Дозировки для начала курса стероидного лечения. Лечение проблем с речью.

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ע ב ר ית Hebrew. United Parent Projects Muscular Dystrophy. 指南的核心部份已发表在 Lancet Neurology 杂志上。他们分别对DMD不同阶段的治疗方法进行评估，判断是否为必须、适当或不适当。 DMD 孩子在不同的疾病阶段所需的治疗和护理方案有所不同，这份指南将为您提供不同阶段的治疗和护理意见见图1. Bushby K, et al. The Diagnosis and Management of Duchenne Muscular Dystrophy, part 1: diagnosis, and pharmacological and psychosocial management, Lancet Neurology 2010, 9(1) 77-93. 可以从以下网址免费下载 http:/ www.treat-nmd.eu/diagnosis-and-management-of-DMD/. Information based on consensus statement.

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Late ambulatory

http://www.dmd-guide.org/disease-stages/late-ambulatory

ע ב ר ית Hebrew. When to suspect DMD. Confirming the diagnosis of DMD. Why genetic confirmation is important. What assessments should be done and why. Drug treatments for muscle symptoms. The different steroid regimes. Doses for starting and maintaining steroids. Management of steroid medication. Other drugs and dietary supplements. Physiotherapy and occupational therapy. Management of muscle extensibility and joint contractures. Wheelchairs, seating and other equipment. Help with bone and joint problems.

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ע ב ר ית Hebrew. Fase della deambulazione precoce. Fase di non-deambulazione precoce. Fase di non deambulazione tardiva. Quando sospettare la DMD. Conferma della diagnosi della DMD. Perché la conferma genetica è importante. Quali valutazioni fare e perché. Trattamento medico dei sintomi muscolari. Trattamento con gli steroidi. I diversi regimi degli steroidi. Dosi per iniziare e continuare gli steroidi. Gestione della cura con gli steroidi. Altri medicinali e integratori alimentari. Una guida per le fami...

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De Diagnose en Behandeling van Duchenne Spierdystrofie

http://www.dmd-guide.org/nl

ע ב ר ית Hebrew. Zorg rond de diagnose. Wanneer is er een vermoeden van DMD. Het bevestigen van de diagnose DMD. Waarom is genetische bevestiging van belang. Welke onderzoeken moeten gedaan worden en waarom. Geneesmiddelen voor de behandeling van spiersymptomen. De verschillende corticosteroiden schema’s. Dosis voor het starten en onderhouden van corticosteroïdengebruik. Behandeling met corticosteroïden medicatie. Andere geneesmiddelen en voedingssupplementen. Rolstoelen, stoelen en andere hulpmiddelen.

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treat-nmd.eu

TREAT-NMD : Advancing diagnosis, care and treatment for people with neuromuscular diseases around the world.

http://www.treat-nmd.eu/home.php

All about the network. Network Chair and Vice-Chair. About the TREAT-NMD network. Donate to the TREAT-NMD Alliance. Nominations for Executive Committee members. Draft of EU data protection regulation. Meetings and events calendar. Submit a newsletter article. Cookies and privacy policy. Neuromuscular care and trial centres. Care and trial site registry. What is a patient registry? List of registries by disease. Principles of a review. Future meetings and events. NMR (MRI and MRS). Why use the BioBank?

en.care-nmd.eu

CARE-NMD: Family Guide

http://en.care-nmd.eu/international/family-guide

Improving care for Duchenne muscular dystrophy. 2013 International Conference on DMD. CARE-NMD IN YOUR COUNTRY. The Standards of Care set out in. The diagnosis and management of Duchenne muscular dystrophy. Are a valuable resource for care providers, patients and their families. However, as an academic publication, the language used in the article. Is not always accessible to people without a medical background. The Muscular Dystrophy Association. Parent Project Muscular Dystrophy.

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The Diagnosis and Management of Duchenne Muscular Dystrophy

ע ב ר ית Hebrew. When to suspect DMD. Confirming the diagnosis of DMD. Why genetic confirmation is important. What assessments should be done and why. Drug treatments for muscle symptoms. The different steroid regimes. Doses for starting and maintaining steroids. Management of steroid medication. Other drugs and dietary supplements. Physiotherapy and occupational therapy. Management of muscle extensibility and joint contractures. Wheelchairs, seating and other equipment. Help with bone and joint problems.

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