duchenneactioncommittee.com
This site is under development
duchenneactioncommittee.net
This site is under development
duchenneactioncommittee.org
This site is under development
duchennealliance.com
Duchenne Alliance
United to Beat Time. We are an alliance of independent non-profit organizations dedicated to defeating Duchenne muscular dystrophy. The Duchenne Alliance member foundations collaborate to co-identify, co-review, and co-fund the most promising biomedical research. We have established the Duchenne Alliance Research Fund to receive monetary donations and direct these resources to advancing the top biomedical research and clinical trials. United to Advance Therapies. Travel Grant for REVERSE-DBMD Trial.
duchennealliance.org
Duchenne Alliance
United to Beat Time. We are an alliance of independent non-profit organizations dedicated to defeating Duchenne muscular dystrophy. The Duchenne Alliance member foundations collaborate to co-identify, co-review, and co-fund the most promising biomedical research. We have established the Duchenne Alliance Research Fund to receive monetary donations and direct these resources to advancing the top biomedical research and clinical trials. United to Advance Therapies. Travel Grant for REVERSE-DBMD Trial.
duchenneanalytics.com
Duchenne Analytics - your research hub
Duchenne Analytics represents a collaboration between multiple Duchenne muscular dystrophy-funding organizations to aggregate information relevant to advocacy, drug development and clinical care. This is the only site with a database that combines public and private funding sources for the most complete information about world-wide DMD funding available. What else you can find here: De-identified Duchenne Connect Patient Registry data, attributes of current clinical trials, and real-time feeds fo...
duchenneballoon.org
Home — Duchenne Balloon
Find a balloon seller. On 7 September 2015 people around the world will release digital balloons to raise awareness and money for Duchenne Muscular Dystrophy, a devastating disease. Our aim is to sell as many balloons as possible. Because the more sold, the more impact we can make. Your help is much appreciated :-). So, how does it work? Prefer to just buy a balloon? Go to Buy a balloon. And follow the steps. After registration log in and upload a personal photo and add a motivation. Meet our balloon sel...
duchenneblog.wordpress.com
Duchenne betegséggel élni – Barni és a Duchenne izomdisztrófia
Barni és a Duchenne izomdisztrófia. Május 13, 2014. Meglesz az első DMD-re fejleszett gyógyszer. Már a részeredményekből sejteni lehetett, de ez most már végleges: az Idebenone. A tesztelések III. fázisában elérte az elsődleges végpontot. Bővebben… →. Március 7, 2014. Barnit beválogatták a Tadalafil klinikai kipróbálásába. Bővebben… →. December 6, 2013. Action Duchenne konferencia 2013 – 1. Bővebben… →. Szeptember 17, 2013. Re (részletek a korábbi posztban itt. Bővebben… →. Szeptember 16, 2013. Az intern...
duchennecabinetry.co.za
Duchenne Cabinetry - Custom-built contemporary furniture
Plinth and Pedestal Hire. Handcrafted furniture made in Cape Town. Plinth and Pedestal Hire. At Duchenne Cabinetry we manufacture custom-built contemporary furniture. We have a passion for proportions and enjoy the challenge of working with simple, clean lines in a variety of mediums. All our fitted and free-standing furniture is hand crafted with old fashioned durability in mind whilst incorporating the latest style trends and contemporary fittings and fixtures. 4 Penryn Road, Salt River, Cape Town.
duchennecanada.org
Stand For Duchenne Canada - Connecting those affected by Duchenne
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. STAND FOR DUCHENNE CANADA IS DEDICATED TO SUPPORTING FAMILIES DIAGNOSED WITH DUCHENNE. FDA grants accelerated approval to first drug for Duchenne muscular dystrophy. To receive information and updates from Stand for Duchenne Canada, sign up here. Sign up for email updates. Pin It on Pinterest. Stand For Duchenne Canada.
duchennecaspe.wordpress.com
Ataluren Ya en Aragón
Ataluren Ya en Aragón. SEGUNDA JORNADA DUCHENNE- CASPE. UNA LUCHA CONTRA EL TIEMPO Y EL SÍNDROME DE DUCHENNE. MANIFESTACIÓN 14 DE NOVIEMBRE CASPE. NOS REAFIRMAMOS en nuestra petición al Gobierno de Aragón. LA VIDA DE NUESTROS HIJOS NO TIENE PRECIO. Para reproducir la foto solicitar permisos. Somos Carmen (mamá de Sergio de 7 años) e Irene (mamá de Carlos y Mario de 9 años). Nuestros hijos padecen una enfermedad neurodegenerativa grave llamada Distrofia Muscular de Duchenne. Podría frenar su enfermedad.
