Stand for Duchenne Canada is an organization founded by a small group of individuals whose lives have been touched by Duchenne muscular dystrophy.
http://www.duchennecanada.org/
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Stand For Duchenne Canada - Connecting those affected by Duchenne | duchennecanada.org Reviews
https://duchennecanada.org
Stand for Duchenne Canada is an organization founded by a small group of individuals whose lives have been touched by Duchenne muscular dystrophy.
duchennecanada.org
News - Stand For Duchenne Canada
http://duchennecanada.org/news-events
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. Marathon Pharmaceuticals pauses rollout of DMD drug in US. February 14, 2017. To learn more click here. FDA Approves EMFLAZA (deflazacort) Tablets and Oral Suspension for the Treatment of Duchenne Muscular Dystrophy in Patients 5 Years and Older. February 10, 2017. February 14, 2017. Click here to learn more. January 10, 2017.
Share Your Story - Stand For Duchenne Canada
http://duchennecanada.org/share-your-story
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. Raquo; Share Your Story. We understand first-hand the challenges that you are going through. We are looking to share powerful stories like yours with others to help them in their journey with Duchenne, and to help us advocate for the Duchenne community across the country. To read our founders story, click here. Pin It on Pinterest.
Newsletter - Stand For Duchenne Canada
http://duchennecanada.org/news-events/newsletter
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. Raquo; News & Events. To receive information and updates from Stand for Duchenne Canada, sign up here. Subscribe to our mailing list. Sign up for email updates. Pin It on Pinterest. Stand For Duchenne Canada. Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. News & Events.
Find an expert/clinic - Stand For Duchenne Canada
http://duchennecanada.org/resources/find-an-expertclinic
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. Raquo; Find an expert/clinic. 2888 Shaganappi Trail NW, Calgary, AB T3B 6A8. Dr Hannah Kolinski – 780-735-7999 X153951. Dr Jean Mah – 403-955-7603. Dr Bev Prieur – 403-955-760. Foothills Medical Centre and South Health Campus. 1403 29 St NW, Calgary, AB T2N 2T9. Dr Lawrence Korngut – 403-255-4494. University of Alberta Hospital.
Care and treatment - Stand For Duchenne Canada
http://duchennecanada.org/disease-treatment/care-and-treatment
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. Raquo; Disease & Treatment. Raquo; Care and treatment. Once your child’s diagnosis is confirmed, he will be offered a number of treatments and supportive therapies aimed to help slow the progression of the disease, control symptoms and improve quality of life. Common supportive therapies and treatments include:. Duchenne affects th...
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Events - La Force DMD
http://laforcedmd.com//events
Antoine le 1er IRONKIDS La Force. Subscribe to our Newsletter. Does your child have a specific genetic mutation for DMD? What You Need to Know about Registries. What’s your genetic profile? Which treatment and clinical research targets your genetic mutation? How can you access a new treatment? How do researchers test new treatments? Understanding what happens with new treatments. How are drugs approved for use in Canada? Who decides to reimburse drug costs? Subscribe to our Newsletter.
Elias Alejandro Carbajal « World Duchenne Awareness Day
http://www.worldduchenneday.org/elias-alejandro-carbajal
Photo Blog by Elias Alejandro Carbajal. Hola, mi nombre es Elias Alejandro Carbajal, tengo 14 años, me dicen Ale. Vivo en Olavarría provincia de Buenos Aires Argentina. Voy a la escuela secundaria, estoy en 3 año. Mi familia está compuesta por mi mamá Verónica, mi papá Pablo y mis dos hermanas Lourdes y Fátima. Me gusta mucho cocinar y tomo clases de cocina. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Duchenne Parent Project Belgium. Little O against DMD.
Colin Werth « World Duchenne Awareness Day
http://www.worldduchenneday.org/colin-werth
Photo Blog by Colin Werth. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Duchenne Parent Project Belgium. Little O against DMD. Nema – Vlaamse vereniging neuromusculaire aandoeningen. Stand for Duchenne Canada. Duchenne Parent Project China. ACDM Asociacion Colombiana para la distrofia muscular. Asociacion De Pacientes Con Distrofias Musculares De Costa Rica. The Egyptian society of Friends of Genetically Disprivileged Families. Duchenne Parent Project Poland.
Jezreel Govender « World Duchenne Awareness Day
http://www.worldduchenneday.org/jezreel-govender
Photo Blog by Jezreel Govender. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Duchenne Parent Project Belgium. Little O against DMD. Nema – Vlaamse vereniging neuromusculaire aandoeningen. Stand for Duchenne Canada. Duchenne Parent Project China. ACDM Asociacion Colombiana para la distrofia muscular. Asociacion De Pacientes Con Distrofias Musculares De Costa Rica. The Egyptian society of Friends of Genetically Disprivileged Families. Friends Of Alec Syphas.
Beschi Flaviu Florin « World Duchenne Awareness Day
http://www.worldduchenneday.org/beschi-flaviu-florin
Photo Blog by Beschi Flaviu Florin. My name is Beschi Flaviu Florin. I am 6 years old and I live in Cluj, Romania. Know that there are people who dream to fly, to climb the Everest, to walk on the moon….my only dream is to be like other children. I have one dream and I always think of it… it is called “hope”. If I could, I would stop time. My worst nightmare is time which is passing by slowly. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Little O against DMD.
Mohamed Tayeb « World Duchenne Awareness Day
http://www.worldduchenneday.org/mohamed-tayeb
Photo Blog by Mohamed Tayeb. Je suis Mohamed, j’ai 10 ans et je vis a m’sila dans l’est de l’Algérie. Je vais a l’école en compagnie de mon père parce que j’ai des difficultés a me déplacé tous seule, j’aime la nature et la mer. Mon plus grand souhait c’est que les chercheurs trouve un traitement pour guérir les malades du monde entier qui ont la Dystrophie Musculaire de Duchenne. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Duchenne Parent Project Belgium.
Stan Eshuis « World Duchenne Awareness Day
http://www.worldduchenneday.org/stan-eshuis
Photo Blog by Stan Eshuis. ADM – Asociación Distrofia Muscular para las Enfermedades Neuromusculares. ADM – El evento. Duchenne Parent Project Belgium. Little O against DMD. Nema – Vlaamse vereniging neuromusculaire aandoeningen. Stand for Duchenne Canada. Duchenne Parent Project China. ACDM Asociacion Colombiana para la distrofia muscular. Asociacion De Pacientes Con Distrofias Musculares De Costa Rica. The Egyptian society of Friends of Genetically Disprivileged Families. Duchenne Parent Project Poland.
Jorge Coll Doñetz « World Duchenne Awareness Day
http://www.worldduchenneday.org/jorge-coll-donetz
Photo Blog by Jorge Coll Doñetz. Los Coll Doñetz formamos parte de los primeros grupos de pacientes y familiares que el equipo del Dr. Dubrovski atendió desde que existe la Asociación Distrofia Muscular (ADM). Colaboro con ADM en la difusión de las Enfermedades Neuromusculares, participo en esta revista, en el MostrArte, fui entrevistado por la TV Pública para el ciclo “Médicos por Naturaleza”, entre otras cuestiones. En el año 2009 conseguí algo impensado, viajar solo a cientos de kilómetros de casa sen...
Mission - La Force DMD
http://laforcedmd.com/notre-mission
Antoine le 1er IRONKIDS La Force. Subscribe to our Newsletter. Does your child have a specific genetic mutation for DMD? What You Need to Know about Registries. What’s your genetic profile? Which treatment and clinical research targets your genetic mutation? How can you access a new treatment? How do researchers test new treatments? Understanding what happens with new treatments. How are drugs approved for use in Canada? Who decides to reimburse drug costs? Subscribe to our Newsletter. The Force Foundati...
Events - La Force DMD
http://laforcedmd.com/events
Antoine le 1er IRONKIDS La Force. Subscribe to our Newsletter. Does your child have a specific genetic mutation for DMD? What You Need to Know about Registries. What’s your genetic profile? Which treatment and clinical research targets your genetic mutation? How can you access a new treatment? How do researchers test new treatments? Understanding what happens with new treatments. How are drugs approved for use in Canada? Who decides to reimburse drug costs? Subscribe to our Newsletter.
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Duchenne Alliance
United to Beat Time. We are an alliance of independent non-profit organizations dedicated to defeating Duchenne muscular dystrophy. The Duchenne Alliance member foundations collaborate to co-identify, co-review, and co-fund the most promising biomedical research. We have established the Duchenne Alliance Research Fund to receive monetary donations and direct these resources to advancing the top biomedical research and clinical trials. United to Advance Therapies. Travel Grant for REVERSE-DBMD Trial.
Duchenne Analytics - your research hub
Duchenne Analytics represents a collaboration between multiple Duchenne muscular dystrophy-funding organizations to aggregate information relevant to advocacy, drug development and clinical care. This is the only site with a database that combines public and private funding sources for the most complete information about world-wide DMD funding available. What else you can find here: De-identified Duchenne Connect Patient Registry data, attributes of current clinical trials, and real-time feeds fo...
Home — Duchenne Balloon
Find a balloon seller. On 7 September 2015 people around the world will release digital balloons to raise awareness and money for Duchenne Muscular Dystrophy, a devastating disease. Our aim is to sell as many balloons as possible. Because the more sold, the more impact we can make. Your help is much appreciated :-). So, how does it work? Prefer to just buy a balloon? Go to Buy a balloon. And follow the steps. After registration log in and upload a personal photo and add a motivation. Meet our balloon sel...
Duchenne betegséggel élni – Barni és a Duchenne izomdisztrófia
Barni és a Duchenne izomdisztrófia. Május 13, 2014. Meglesz az első DMD-re fejleszett gyógyszer. Már a részeredményekből sejteni lehetett, de ez most már végleges: az Idebenone. A tesztelések III. fázisában elérte az elsődleges végpontot. Bővebben… →. Március 7, 2014. Barnit beválogatták a Tadalafil klinikai kipróbálásába. Bővebben… →. December 6, 2013. Action Duchenne konferencia 2013 – 1. Bővebben… →. Szeptember 17, 2013. Re (részletek a korábbi posztban itt. Bővebben… →. Szeptember 16, 2013. Az intern...
Duchenne Cabinetry - Custom-built contemporary furniture
Plinth and Pedestal Hire. Handcrafted furniture made in Cape Town. Plinth and Pedestal Hire. At Duchenne Cabinetry we manufacture custom-built contemporary furniture. We have a passion for proportions and enjoy the challenge of working with simple, clean lines in a variety of mediums. All our fitted and free-standing furniture is hand crafted with old fashioned durability in mind whilst incorporating the latest style trends and contemporary fittings and fixtures. 4 Penryn Road, Salt River, Cape Town.
Stand For Duchenne Canada - Connecting those affected by Duchenne
Get and give support. Disease & Treatment. How Duchenne is inherited. Diagnosis and genetic testing. Clinical trials and patient registries. News & Events. Get & Give Support. STAND FOR DUCHENNE CANADA IS DEDICATED TO SUPPORTING FAMILIES DIAGNOSED WITH DUCHENNE. FDA grants accelerated approval to first drug for Duchenne muscular dystrophy. To receive information and updates from Stand for Duchenne Canada, sign up here. Sign up for email updates. Pin It on Pinterest. Stand For Duchenne Canada.
Ataluren Ya en Aragón
Ataluren Ya en Aragón. SEGUNDA JORNADA DUCHENNE- CASPE. UNA LUCHA CONTRA EL TIEMPO Y EL SÍNDROME DE DUCHENNE. MANIFESTACIÓN 14 DE NOVIEMBRE CASPE. NOS REAFIRMAMOS en nuestra petición al Gobierno de Aragón. LA VIDA DE NUESTROS HIJOS NO TIENE PRECIO. Para reproducir la foto solicitar permisos. Somos Carmen (mamá de Sergio de 7 años) e Irene (mamá de Carlos y Mario de 9 años). Nuestros hijos padecen una enfermedad neurodegenerativa grave llamada Distrofia Muscular de Duchenne. Podría frenar su enfermedad.
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Free genetic testing through Decode Duchenne. Watch our fun video to learn more about DuchenneConnect. Learn about Duchenne and Becker muscular dystrophy. Read our family-friendly FAQs on clinical trials. Log in to chat online with one of our Certified Genetic Counselors. Learn about the many benefits of joining the registry. Click here to register now! Find a Clinical Trial. Easily search our family-friendly summaries of clinical trials and research studies. Visit our Professional Portal. Microdystrophi...
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