ingarrettsmemory.blogspot.com
Garrett's House: Testing for EB
http://ingarrettsmemory.blogspot.com/2015/05/testing-for-eb.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. May 5, 2015. Skin Biopsy for EB. Samples of the skin or a blister is taken by a trained doctor. The skin samples must be processed for specific studies, immunofluorescence antigen (IFA) mapping and transmission electron microscopy (EM). Only two labs in the US can process EB biopies:. 1) Beutner Labs, Inc. Buffalo, NY 14215. Http:/ www.beutnerlabs.com/contact/. A great reso...
ingarrettsmemory.blogspot.com
Garrett's House: blended diets
http://ingarrettsmemory.blogspot.com/2015/01/blended-diets.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. January 22, 2015. Instead of the pre-made commercial formula, we choose to give Joey a blended diet. A blended diet is when you take real food and blended up to the consistency of a smoothie. We then feed like a set volume at every meal. Here is a basic guide I came up with that would be easy for someone new to the blended diet world to follow. 560 calories 44g protein).
ingarrettsmemory.blogspot.com
Garrett's House: 4/20/14 - 4/27/14
http://ingarrettsmemory.blogspot.com/2014_04_20_archive.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. April 23, 2014. Rest in Peace Hannah. You can read here blog here: A Cure for Hannah. You can also watch the BEAUTIFUL slideshow done by a friend of her family here! Rest in peace Hannah, you fought a brave battle. You will NOT be forgotten. Labels: hannah york; bone marrow transplant; rdeb. Subscribe to: Posts (Atom). The largest EB research foundation. The Garden of Angels.
biancasnewadventures.com
Bianca's Adventures: October 2013
http://www.biancasnewadventures.com/2013_10_01_archive.html
The dance of life must go on, no matter how much the tune of the music changes.". Monday, October 28, 2013. Little Things Just Little Things. It's EB Awareness Week! In the name of creating awareness about the condition my beautiful daughter deals with on a daily basis I'm just doing a real quick blog regarding a few items around the house that buys us more quality time. Some might seem so minuet while others are crucial to our every day lives.okay ready.set.here we go. Why It's Funny: I'm not sure about...
ingarrettsmemory.blogspot.com
Garrett's House: Site Index
http://ingarrettsmemory.blogspot.com/p/site-index.html
To promote awareness and offer education about a rare genetic skin condition called Epidermolysis Bullosa. A Guide for New Families. New EB parents need to know from the very start. What friends and family. The do’s and don’t. S when it comes to an EB baby in the hospital. For those with EB. For information on wound care,. And wound care products. How we do bath/dressing changes. EB friendly baby products and gear. Including diapers, and clothing). Information on Acid Reflux. Our experience with G-Tubes.
preciousbabyanna.blogspot.com
Anna's World: We are back home!!
http://preciousbabyanna.blogspot.com/2011/12/we-are-back-home.html
Thursday, December 22, 2011. We are back home! After one month of stay at hospitals we are back at home. I am so thankful that I could bring my baby back home. Now each day with her is a blessing for me. I am so grateful to God for selecting me to be Anna's mom. She is such a precious baby. Seeing her smiling melts my heart. She is doing better now. You all have a Merry Christmas! Posted by anna's mommy. December 23, 2011 at 11:34 AM. Praying for Anna,. Subscribe to: Post Comments (Atom).
preciousbabyanna.blogspot.com
Anna's World: August 2011
http://preciousbabyanna.blogspot.com/2011_08_01_archive.html
Thursday, August 18, 2011. Today I would like to thank my mom for what she has done for us and for Anna. My mom was at our side since Anna's birth. She has seen Anna's ups and downs. She has been staying with us for six and half months now to help us with Anna. Mom is going back on next Saturday to her home at NY. My words are not enough to say thank you to both of our families to helping us with this difficult situation. Anna you are blessed to have loving grand parents. Posted by anna's mommy.
preciousbabyanna.blogspot.com
Anna's World: Thankful Xmas !!!!
http://preciousbabyanna.blogspot.com/2012/12/thankful-xmas.html
Monday, December 24, 2012. Posted by anna's mommy. Subscribe to: Post Comments (Atom). San antonio, Texas, United States. View my complete profile. Preparing Your Butterfly Child for School. Summer Bucket List 2016. Crew is happy to announce. Fundraising Websites - Crowdrise. Please note that the images in this blog are private. Don't use without permission. If you would like to contact me, please email me at. Please remember to replace' [at] ' with ' @'.
preciousbabyanna.blogspot.com
Anna's World: September 2011
http://preciousbabyanna.blogspot.com/2011_09_01_archive.html
Saturday, September 17, 2011. Posted by anna's mommy. Friday, September 9, 2011. Telling others about EB! I know one day I need to tell this to everyone, one day everyone will know that she has EB. But could I be able to tell that Anna had. EB and she is cured. And is doing fine now? Posted by anna's mommy. Labels: thoughts and feelings. Subscribe to: Posts (Atom). San antonio, Texas, United States. View my complete profile. Preparing Your Butterfly Child for School. Summer Bucket List 2016.
preciousbabyanna.blogspot.com
Anna's World: March 2012
http://preciousbabyanna.blogspot.com/2012_03_01_archive.html
Sunday, March 25, 2012. Happy Bday my princess! Posted by anna's mommy. Subscribe to: Posts (Atom). San antonio, Texas, United States. View my complete profile. Preparing Your Butterfly Child for School. Summer Bucket List 2016. Crew is happy to announce. Fundraising Websites - Crowdrise. Please note that the images in this blog are private. Don't use without permission. If you would like to contact me, please email me at. Please remember to replace' [at] ' with ' @'. Happy Bday my princess!
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