Written by a Cyster (cystic fibrosis patient) who is living life like anyone else in Louisiana. Posts about life, CF, and everything in between.
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Every Life has a Story to Tell | everylifehasastorytotell.blogspot.com Reviews
https://everylifehasastorytotell.blogspot.com
Written by a Cyster (cystic fibrosis patient) who is living life like anyone else in Louisiana. Posts about life, CF, and everything in between.
everylifehasastorytotell.blogspot.com
Every Life has a Story to Tell: July 2011
http://everylifehasastorytotell.blogspot.com/2011_07_01_archive.html
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Saturday, July 30, 2011. I haven't forgotten about the dear blog. But I'm moving again today and then school is really picking up speed. I'll be back soon. Sorry! Doc appointment in 17 days. Posted by Andrea R J. Thursday, July 21, 2011. So first things first: SIX FLAGS AND SHOPPING! And eve...
Every Life has a Story to Tell: Nov. 14, 2011
http://everylifehasastorytotell.blogspot.com/2011/11/nov-14-2011.html
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Monday, November 14, 2011. Nov 14, 2011. I apologize for being absent for about a month and a half. I either never knew what to say or didn't have time to type or just didn't feel like sitting at my computer any longer. I don't even really think I know what to say now, but here I am. I never...
Every Life has a Story to Tell: April 2013
http://everylifehasastorytotell.blogspot.com/2013_04_01_archive.html
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Monday, April 22, 2013. I spoke too soon. Vertex update. Http:/ www.xconomy.com/boston/2013/04/18/vertex-pharmaceuticals-booms-on-cystic-fibrosis-combo-drug-study/. I'm pleased. Yes, just pleased. I'm petrified. But ecstatic. Did you watch Zero Dark Thirty? Posted by Andrea R J. Here is my p...
Every Life has a Story to Tell: April 2012
http://everylifehasastorytotell.blogspot.com/2012_04_01_archive.html
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Sunday, April 29, 2012. Graduation date: Nov. 17. 28 weeks and 6 days away. (After this quarter) 5 classes, 1 practicum, and 1 internship away. And not a clue of what I'll be doing Nov. 18 and on. Posted by Andrea R J. Subscribe to: Posts (Atom). Here is my personal opinion of the Afflovest!
Every Life has a Story to Tell: April 2011
http://everylifehasastorytotell.blogspot.com/2011_04_01_archive.html
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Wednesday, April 27, 2011. Posted by Andrea R J. Saturday, April 23, 2011. Health update family time. I've got CF on lockdown, yall. I did lose a pound, but we contributed it to my antibiotic which has seriously curbed my appetite lately. They're not worried about it. I cannot wait. I do...
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unknowncystic | The Unknown Cystic
https://unknowncystic.wordpress.com/author/unknowncystic
Leaving a digital record for my family and virtual friends. Skip to primary content. Skip to secondary content. The Unknown Cystic – Fighting CF with Words, Humor, and a Flail. I have no shoes, but . . . August 1, 2016. I’m going to misquote a quote. I apologize to the writer, but it’s a great quote and helps me get through the day. Its source is mysterious on the web. This is my version, “I felt sorry for myself because I had no shoes until I met a man who had no feet.”. July 28, 2016. The year didnR...
Cystic Fibrosis and Life: 05/06/15
http://www.azerscfwebsite.com/2015_05_06_archive.html
May 6, 2015. His vitals were great, but his Fev1 was down to the lower 70's. We are doing a course of oral antibiotics and steroids. If there isn't improvement at his next clinic visit in a few weeks, it might be time for IV antibiotics. It's been a few years since his last admission, so we've been pretty lucky. Also wanted to let everyone know that it is 24 days until the CF walk. It will be on Saturday, May 30th at the Vitruvian Park in Addison. Check in time is at 8am and the walk starts at 9am. Cysti...
I Have CF. So what?!: Inspiration
http://ihavecfsowhat.blogspot.com/2015/04/inspiration.html
Wednesday, April 22, 2015. By now, you've probably heard about the man with muscular dystrophy who, determined to complete a marathon, crossed the finish line 20 hours after he started. I've heard a lot of reactions to this: "Inspiring! And do I agree that this is amazing? Of course. In fact, I think ANY ONE who commits to running a marathon is inspiring. But this guy was pretty cool because I'm all about doing stuff that people think you can't do, defying the odds, etc. This is where I get uncomfortable.
I Have CF. So what?!: Money Money Money Money.... MONEY
http://ihavecfsowhat.blogspot.com/2014/11/money-money-money-money-money.html
Wednesday, November 19, 2014. Money Money Money Money. MONEY. About 15 years ago, the Cystic Fibrosis Foundation made what was considered a risky foray for a nonprofit organization into the world of business. It began giving money to a small biotechnology company to entice it to develop drugs for the deadly lung disease. The New York Times. Read the Full article here: http:/ www.nytimes.com/2014/11/19/business/for-cystic-fibrosis-foundation-venture-yields-windfall-in-hope-and-cash.html? But, I'm idealist...
I Have CF. So what?!: August 2015
http://ihavecfsowhat.blogspot.com/2015_08_01_archive.html
Wednesday, August 19, 2015. It has been a month on Orkambi, and I'm already starting to feel the effects in a very real way. I didn't want to post 2 weeks in because I knew a lot of what I was feeling was the placebo effect, but I have begun to notice my "new normal.". Here are the most notable things I've noticed:. 1) On just about day 1 or 2 I woke up and noticed that my lips were incredibly smooth. So much so, that I couldn't stop touching them! 5) My sinuses cleared up. This came even before the ...
Cystic Fibrosis and Life: 03/26/15
http://www.azerscfwebsite.com/2015_03_26_archive.html
March 26, 2015. Hopefully the oral antibiotics will get his lungs feeling better again. He commented recently how much relief he gets from manual CPT and running, so we have been doing both without fail! Subscribe to: Posts (Atom). Joggers for Azer 2016. Help Find A Cure! Jogging With Azer Runkeeper. Welcome to Our CF and Life Blog! Thank you for coming! We're glad you've found our blog! You'll stay updated on Azer's life with CF, and how much he can do, even with having Cystic Fibrosis. Be an Organ Donor.
Cystic Fibrosis and Life: Tune-Ups
http://www.azerscfwebsite.com/p/tune-ups.html
Azer's First PICC Line. This information is dependent on the hospital the person is admitted to. The dietitian may come in just to review the patient’s weight and nutrition while they stay at the hospital. If there are any dietary issues needing to be resolved, the hospital admission is a great time to do so, as all needed resources are at hand from the inpatient pharmacy. Subscribe to: Posts (Atom). Joggers for Azer 2016. Help Find A Cure! Jogging With Azer Runkeeper. Welcome to Our CF and Life Blog!
Cystic Fibrosis and Life: Sick...
http://www.azerscfwebsite.com/2015/01/sick.html
January 30, 2015. Azer is still on steroids. a very lose dosage every other day, but still on them. His IGE levels are slowly dropping, and we are still doing labs every other week. I just know we have to keep working hard, doing breathing treatments, CPT, running, praying. whatever it takes. Subscribe to: Post Comments (Atom). Joggers for Azer 2016. Help Find A Cure! Jogging With Azer Runkeeper. Welcome to Our CF and Life Blog! Thank you for coming! We're glad you've found our blog! Be an Organ Donor.
Cystic Fibrosis and Life: Clinic Day
http://www.azerscfwebsite.com/2014/10/clinic-day.html
October 15, 2014. Yesterday, his weight was up to 66 lbs. He's been eating very well on the steroids as always, so the weight gain is likely temporary, but I know this gives him an opportunity to have a normal appetite which is nice to see. Because he is finally responding well to the steroids and anti-fungal medication, we can stop the Voriconizole next week! Also, next week we will lower the steroids further. They will check is IGE levels next week to see if we can lower the steroids or stop them.
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Vicki Bullock's Blog | Lord, we need you now…
Light For The Path…. The Best Of Life. Vicki Bullock's Blog. Lord, we need you now…. July 20, 2012 by candleinthedarkness. This blog is a compilation of feelings, emotions and so much more! It’s experiences I’ve had, situations, trials and tribulations I’m currently going through and how I’m dealing with them. I fully believe in Jesus Christ as my Savior. I believe each of us is given talents and/or abilities to be used for the glory of the Lord. What then shall we say to these things?
everylifeeveryfun.blogspot.com
Every Life, Every Fun
Mangoes and other creative things. Wednesday, October 16, 2013. Jon had Columbus Day off,. And we had a lovely lunch at Bill's. Where I got a nacho burger. That's right, a burger that had nachos. And all the trimming of nachos. It was freakin' amazing. And a strawberry shake. And some disco fries. After work I went to Uniqlo to try to buy. Some more stretch pants. The Old Navy pants I got. Smell like burnt plastic,. Even after washing them twice. I've not smelled them lately,. It was called Noodies.
EveryLife Foundation for Rare Diseases
Dedicated to accelerating biotech innovation for rare disease treatments through science-driven public policy. We are a science-based advocacy organization that works to bring lifesaving treatments to the 30 million Americans with rare diseases. We focus on educating and activating the patient community to ensure they are heard by policy makers in government and by industry developing the treatments. Affecting 1 in 10 Americans. Have no FDA approved treatments. Sign Up for Our Newsletter. January 26, 2018.
My Blog | Just another WordPress site
Just another WordPress site. Skip to primary content. Skip to secondary content. January 4, 2012. Proudly powered by WordPress.
everylifehasastorytotell.blogspot.com
Every Life has a Story to Tell
Every Life has a Story to Tell. And this is me telling mine. Who of you by worrying can add a single hour to his life? Since you cannot do this very little thing, why do you worry about the rest? Some topics I cover. Tuesday, June 6, 2017. Have we ever just stopped and thought about how thankful we really aren't? I had that moment today. Today I "met" via Facebook another CFer through a CF group online. He's 35 and just had his first round of IV antibiotics for a lung exacerbation. Among other issues tha...
everylifeimportant.blogspot.com
Every Life is Important
Every Life is Important. A tell all of truth, experience, goals, dreams and fears. Taste reality with me. Wednesday, December 4, 2013. Truth or Dare or infectious wound. Last nights dream makes me think that God is telling me that I am failing at my mission, that although there is potential for change from the life of Elijah, I am failing at making that happen. Did I ever get to snuggle, feed and feel the soft skin of that precious little baby? When I was raped in the facility that I now live in, and hav...
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Chembe Joyous Childrens Home. WE ARE ALL ABOUT HOPE AND DIGNITY THROUGH EMPOWERMENT. The very heart of our existence is our belief that every life deserves the opportunity to thrive. December.Roof is on! We need Doors and Windows next! November.Foundation and 4 walls are up! We need a roof and Doors and Windows next. We invite and engage others to join us in our vision and mission to empower people who are stuck in the cycle of poverty in Malindi, Kenya. Deserves the opportunity to thrive. Every Life, Inc.
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www.everylifeinsured.org
This Web page parked FREE courtesy of AxisDomains.com. Search for domains similar to. Is this your domain? Let's turn it into a website! Would you like to buy this. Find Your Own Domain Name. See our full line of products. Call us any time day or night (877) 279-7959.
