Living with Fragile X takes a rare and intimate look at lives of several families who have a member affected by fragile x syndrome. Available on DVD at www.livingwithfragilex.com
http://www.livingwithfragilex.com/
TODAY'S RATING
>1,000,000
Date Range
HIGHEST TRAFFIC ON
Thursday
LOAD TIME
0.4 seconds
16x16
32x32
64x64
128x128
ThinkMedia
Kathy Elder
1385 ●●●●●venue
Cap●●●ola , CA, 95010
US
View this contact
ThinkMedia
Kathy Elder
1385 ●●●●●venue
Cap●●●ola , CA, 95010
US
View this contact
Account Support
Domain Manager
10 Corpora●●●●●●●●●● Suite 300
Bur●●●ton , MA, 01803
US
View this contact
BUY YOUR DOMAIN
18
YEARS
5
MONTHS
10
DAYS
TUCOWS DOMAINS INC.
WHOIS : whois.tucows.com
REFERRED : http://domainhelp.opensrs.net
PAGES IN
THIS WEBSITE
8
SSL
EXTERNAL LINKS
23
SITE IP
65.254.227.240
LOAD TIME
0.38 sec
SCORE
6.2
Living with Fragile X | livingwithfragilex.com Reviews
https://livingwithfragilex.com
Living with Fragile X takes a rare and intimate look at lives of several families who have a member affected by fragile x syndrome. Available on DVD at www.livingwithfragilex.com
livingwithfragilex.com
Order Living with Fragile X DVD
http://www.livingwithfragilex.com/order.htm
FREE Shipping within the United States. Please allow a few seconds while you are connected to our merchant services. This transaction will appear as PAYPAL *DVDORDERS. On your credit card statement. California residents will be charged 8.25% sales tax. A PayPal account is NOT required. Buy DVD Main Menu.
About Fragile X
http://www.livingwithfragilex.com/fragilex.htm
Fragile X syndrome is the most common cause of inherited mental retardation. The full mutation appears in approximately 1 in 2000 males and 1 in 4000 females. The premutation occurs in about 1 in 250 females and 1 in 700 males. Those who carry the premutation have a high chance of passing either the full mutation or the premutation to their offspring. While some females with fragile X syndrome will exhibit these characteristics, fewer females are affected and their degree of impact is usually diminished.
Living with Fragile X - Fundraising
http://www.livingwithfragilex.com/fundraising.htm
Fundraising with “Living with Fragile X”. Ldquo;Living with Fragile X” is a powerful, story-driven introduction to fragile X. Syndrome. It was created to raise awareness among the general public about fragile X. If you would like to feature “Living with Fragile X” at your fragile X fundraiser, you are welcome to do so. Tell us about your fundraiser. Email us at info@livingwithfragilex.com. Help us promote the documentary. Download the flyer here. And make copies to distribute. Add us to your website.
Living with Fragile X - Photos 1 of 9
http://www.livingwithfragilex.com/gallery.htm
Living with Fragile X - News
http://www.livingwithfragilex.com/news.htm
Living with Fragile X on PBS and available through NETA. PBS stations will continue to air Living with Fragile X throughout 2012, check your local PBS station's website for listings. If Living with Fragile X is not listed with your station, call or write their Audience Services department and encourage them to air Living with Fragile X. We can provide contact information. If you can't find it on the station's web site. In Thessaloniki, Greece! Photos and stories to come from Greece! July 2008 Internation...
TOTAL PAGES IN THIS WEBSITE
8
Our Fragile X Journey: Life in the Makris house after STX-209
http://ourfxjourney.blogspot.com/2013/06/life-in-makris-house-after-stx-209.html
Our Fragile X Journey. Wednesday, June 19, 2013. Life in the Makris house after STX-209. One of the first things we noticed was how much he is repeating nonsense phrases and gibberish. Just sitting there mumbling a whole lot of nothing or moaning. I really did forget how bad that used to be. Subscribe to: Post Comments (Atom). What Is Fragile X? Donate To Fragile X Research. Fragile X of Michigan. Time Magazine - Fragile X Factor. Living With Fragile X - A Remarkable Documentary. Ripping off the band-aid.
Our Fragile X Journey: Makris Holiday Rooooaaaad trip...Part 2
http://ourfxjourney.blogspot.com/2013/08/makris-holiday-rooooaaaad-trippart-2.html
Our Fragile X Journey. Saturday, August 17, 2013. Makris Holiday Rooooaaaad trip.Part 2. Michigan will always be home.no matter where we end up, how far away we travel, Michigan will always be home. It will always have a piece of my heart and little piece always breaks every time we leave. Do I understand why we are here in Texas? I do miss the mild summer's though. It's pretty cool when your aunt and uncle have a pool! This all started out pretty innocent and turned into one wild water fight. Hanging ou...
Our Fragile X Journey: Thank You
http://ourfxjourney.blogspot.com/2014/03/its-been-awhile.html
Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the "r" word? How insensitive you sound?
Our Fragile X Journey: June 2013
http://ourfxjourney.blogspot.com/2013_06_01_archive.html
Our Fragile X Journey. Wednesday, June 19, 2013. Life in the Makris house after STX-209. One of the first things we noticed was how much he is repeating nonsense phrases and gibberish. Just sitting there mumbling a whole lot of nothing or moaning. I really did forget how bad that used to be. Friday, June 7, 2013. Ripping off the band-aid. I am concerned for what tomorrow and the next few weeks will bring. With no medication in him will the agitation get worse? Will we have new issues to deal with?
Our Fragile X Journey: September 2012
http://ourfxjourney.blogspot.com/2012_09_01_archive.html
Our Fragile X Journey. Thursday, September 27, 2012. To post or not to post. This is one of the posts that has been written and rewritten and deleted, then written again. I have a few of those in my drafts. You know the blog posts that just feel too personal or too ugly or not positive enough. Maybe I'll post them or maybe I won't. M: How was school? C: Good.sit down (in a very stern voice). M: Did the teacher tell you to sit down? C: Yea a lot. (giggle). Any way I am too stressed out to buy jeans becaus...
Our Fragile X Journey: March 2014
http://ourfxjourney.blogspot.com/2014_03_01_archive.html
Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the "r" word? How insensitive you sound?
Our Fragile X Journey: October 2012
http://ourfxjourney.blogspot.com/2012_10_01_archive.html
Our Fragile X Journey. Tuesday, October 16, 2012. A few blogs ago I talked about the posts that get put into drafts for some reason or another. This is one of those posts. I figured it was now or never. It was written very early on when we got Cupcake. I didn't change any of it except the ending. Does she hate me? Would this life we are giving her be the same kind of life she would have dreamed for her? Would this be the life she would have given her if she could? Would she recognize her? Do I show her?
Fra-gee-lay X: Resources
http://frageelayx.blogspot.com/p/resources.html
What is Fragile X? Your Genes Your Health:. Http:/ www.ygyh.org/. Http:/ www.fraxa.org/. The National Fragile X Foundation:. Http:/ www.fragilex.org/. Http:/ www.genetests.org/. A publicly funded medical genetics information resource developed for physicians, other healthcare providers, and researchers, available at no cost to all interested persons. Select “GeneReviews” do a search on FMR1 or FRAGILE X to pull up information on Fragile X. Http:/ www.fxtas.org/. Dr Marcia Braden (behavioral expert):.
Our Fragile X Journey: Makris Holiday Rooooaaaaddd...trip! Part 1
http://ourfxjourney.blogspot.com/2013/08/makris-holiday-rooooaaaadddtrip-part-1.html
Our Fragile X Journey. Tuesday, August 6, 2013. Makris Holiday Rooooaaaaddd.trip! Of course we made it to victory circle.we're the Makris family. We kissed the bricks. The germaphobe in me got over it. The germaphope in Hayden couldn't. Our kids Love hotels. Hayden especially LOVES hotels. He asks to go to a hotel often. I find this really crazy with his sensory and transitions issues he has. He adores them that's part of the reason I can't win the "let's go on a road trip" speech. What Is Fragile X?
Our Fragile X Journey: March 2013
http://ourfxjourney.blogspot.com/2013_03_01_archive.html
Our Fragile X Journey. Saturday, March 30, 2013. March 30, 2012. March 30, 2012 will always hold a very special place in my heart. That was the day she became my daughter. The day that Hayden became a big brother and the day Mike became a daddy to a little girl. Cynthia Diane Makris.thank you for making me a mommy for the second time. I will love and protect you all the days. Monday, March 18, 2013. My Baby is Eight! My baby is eight! When did this happen? Tuesday, March 5, 2013. Be prepared for FB to bl...
TOTAL LINKS TO THIS WEBSITE
23
Living With Focus!
Healthy living women men children. About Dawn Bast and Living With Focus! Welcome To Living With Focus….let’s go on journey, a journey of abundance! February 4th, 2013. This is a place of connection, of community, and of focussing on the the goodness and abundance of who God is, and who you are. Wanna come along? Welcome To Living With Focus….let’s go on journey, a journey of abundance! On Welcome To Living With Focus….let’s go on journey, a journey of abundance! Design by preuro.eu.
HOME
Living with food allergy. NUT FREE LUNCH IDEAS. NUt FreE LUNCH IDEAS. WELCOME TO LIVING WITH FOOD ALLERGY. WHAT IS ON THIS WEBSITE: basic information about peanut allergy, food allergy, and anaphylaxis . but mostly this website will be about our family’s experience. A FEW FACTS ABOUT FOOD ALLERGY. FOOD ALLERGY AND ANAPHYLAXIS:. The allergic reaction that my son has from peanut protein is.
livingwithfootpain.blogspot.com
Living With Foot Pain
Living With Foot Pain. This is an open discussion hosted by Foot Shapers to talk about anything and everything! Feel free to comment on any of our post topics, we're happy to hear from you! Whether you suffer from foot pain or not, there's so much more to life out there! Help With Foot Pain. Custom fitted orthotics made specifically to the shapes and contours of your feet. Discussions about common foot pain, causes, symptoms, and treatment. Sunday, December 21, 2008. Links to this post. Links to this post.
livingwithforeclosure.wordpress.com
livingwithforeclosure | A blog about my personal experience with foreclosure, my fight, and some handy tips on how to live with foreclosure.
A blog about my personal experience with foreclosure, my fight, and some handy tips on how to live with foreclosure. Hoping for the Best. Last week, we heard someone walking around in the back yard and the dog was going crazy. Then someone started pounding on the front door. We felt really nervous! Was this the sheriff? While I’m grateful it wasn’t the sheriff and that he was so nice, these numbers are a little disconcerting to me. They tell me that most people don’t fight. California law dictates that r...
Welcome livingwithfosters.com - Hostmonster.com
Web Hosting - courtesy of www.hostmonster.com.
Living with Freaks
livingwithfrecklesandwords.blogspot.com
Living with Freckles
Let's talk about books, stories, traveling, adventures, culture, philosophies, and a life with freckles. Sunday, July 28, 2013. Thoughts concerning Monsters, Rats, Toys, and more. If none of these names come to mind, then I highly suggest that you make a hot cup of coffee and sit down and watch every single Pixar movie ever made. 24 hours. It will definitely be worth it. ). Or the rest of the Pixar characters? 8221; Someone else probably had the great animation muse whisper in his ear: “TOYS”...The scene...
Freya & Harley
Tuesday, October 16, 2012. On Saturday we packed the car and went for a long drive to Cluny. I remember last year there were lots of other Leonbergers there and it rained all day! We made several stops on the way down, but me and Harley mainly slept all the way. The weather was lovely when we arrived. When mum and dad had unpacked we went for a walk to the show ground. Harley is being judged this year - just hope he behaves himself! It was very dark when we walked home and we were all very tired. Another...
Living With Frost
95 Quote Prompts by Robert Frost - 95 Poems by Susan Schoeffield. Wednesday, June 1, 2011. 1 - A bank is a place where they lend you an umbrella in fair weather and ask for it back when it begins to rain. Things are looking up. Things are looking good. Moved from should have, could have. Cheering from the sidelines. Ego in full bloom. Bowed before my new friends. Filling up the room. 8220;Failure not an option”. Wasn’t carved in stone. Those who stood beside me. Left me on my own. No one stayed to comfort.
livingwithfulfillment.wordpress.com
Living With Fulfillment | Poetry from a Pensacola lady
Poetry from a Pensacola lady. August 1, 2015. August 2, 2015. We try and look for meaning out of life and what we want or what God wants of us, and sometimes even just getting caught up in thought, we forget to be present in time. If I’m always thinking and planning for the future then I miss out on today always looking at tomorrow. We can say it a million times but it’s been a challenge to start doing. How about you? What do you see in this moment looking around your room or outside, at work? We’v...
