marfandx.org
Marfan DX | Marfan DX
Skip to main content. Know the signs. Fight for victory. Marfan and Related Disorders. What is Marfan Syndrome? What are Related Disorders? What are the Signs? How is the Body Affected? Run or Walk for Victory. Participate in a Study. Annual Report and Financials. A Diagnostic Tool for Healthcare Professionals. Seven simple to follow formulae. Interactive Systemic Score Calculator. Used to consider the lesser characteristics of Marfan syndrome throughout the body that can be key in making the diagnosis&#...
marfanek.cz
Marfanův syndrom
Tento web vznikl za účelem seznamovat pacienty, jejich rodiny, kamarády a ostatní nejen se samotným onemocněním Marfanův syndrom, ale zároveň by měl sloužit jako způsob k získání kontaktů, doporučení vhodných lékařů a navázání vzájemné komunikace mezi pacienty. Co je Marfanův syndrom? Nejčastější příznaky: vysoká postava, dlouhé tenké končetiny, dlouhé tenké "pavoučí" prsty, gotické patro, anomálie chrupu (nahuštěné zuby), kardiovaskulární problémy (dilatace aorty, aneurysma, disekce aorty), zvýšená ohyb...
marfanforeningen.se
Svenska Marfanföreningen
Kontakta oss gärna på. Sällsynta Diagnosers medlemsundersökning går nu att genomföra även för de som inte registrerat någon mejladress i registret. Följ länken till deras hemsida så kan ni göra enkäten. Ågrenska kommer att arrangera en vistelse för vuxna med Marfans syndrom,2017-02-08/10 Se vidare deras hemsida. Nya broschyren är HÄR. Har instiftat utmärkelsen Mitt Stora Stöd för att uppmärksamma personer som finns i vardagen och stöttar ett sjukt barn. Ny skrivning angående profylax vid tandvård.
marfanforlife.wordpress.com
Marfan For Life | This WordPress.com site is the bee's knees
This WordPress.com site is the bee's knees. July 17, 2012. The search for clothing and shoes when you are very tall. This was highlighted as a problem by one of my friends earlier today and what came from it was a productive discussion which has led me to write this piece in the hopes that it will make your lives a little easier. I have added links to the blog already for both (that are not showing up for me annoyingly) http:/ www.tallgirl.com. And also for http:/ www.casualmale.com. I am also told that ...
marfanforum.pl
www.marfanforum.pl • Strona główna forum
Forum osób ze schorzeniem tkanki łącznej. Największa, po Stowarzyszeniu Marfan Polska, baza wiedzy na temat Zespołu Marfana,. Wsparcie i pomoc przyjaciół. Nie wahaj się pytać! Bull; Aktywne wątki. Czyli specjalny dział, w którym możecie się napisać kilka słów o sobie. 27 mar 2018, o 19:31. Czyli nasze życie z Marfanem. 27 mar 2018, o 09:05. 1 mar 2018, o 21:56. Badania, które należy wykonywać przy ZM. 7 sty 2018, o 09:19. Lekarze, szpitale, operacje. 26 mar 2018, o 20:50. 9 sty 2017, o 21:10. Dobrze :) W...
marfanforum.takeforum.com
takeforum.com - This website is for sale! - takeforum Resources and Information.
The owner of takeforum.com. Is offering it for sale for an asking price of 5000 USD! The owner of takeforum.com. Is offering it for sale for an asking price of 5000 USD! This webpage was generated by the domain owner using Sedo Domain Parking. Disclaimer: Sedo maintains no relationship with third party advertisers. Reference to any specific service or trade mark is not controlled by Sedo nor does it constitute or imply its association, endorsement or recommendation.
marfangirl.blogspot.com
Tall Like The Sunflowers
Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe...
marfangroup.livejournal.com
Long Tall Folks' Journal
Long Tall Folks Journal. Losartan: morning or evening? 23 Jun 2011 09:14pm. I've just been put on Losartan by my cardiologist. The packet is sitting here with me, but I'm unsure when to take my first one. Morning or evening? My blood pressure is low to low-end-of-normal. I've been on Losartan before, but only for a brief period as it made me feel unwell. I need to stick with them now, though, so I wondered if anyone here had advice to offer. Well, bugger. Chocolate and Marfans. 23 Mar 2009 07:18pm. Sheen...
marfanhilfe.de
AJAX Chat
Marfan Hilfe (Deutschland) e.V. - Chat. Der Chat für Menschen mit Marfan-Syndrom und deren Angehörige. Information zum Marfan Chat. Der Chat ist nicht dauerhaft offen, sondern wird von uns nach Ankündigung geöffnet und moderiert. Bitte geben Sie Ihren Benutzernamen und Ihr Passwort ein, um mit anderen Menschen zu chatten.
marfanhilfe.org
Marfanhilfe.org - Marfan Hilfe (Deutschland) e.V.
Diese Seite / Domain gehört der Marfan Hilfe (Deutschland) e.V. Alle Informationen zum Marfan-Syndrom. Und zum Verein erhalten Sie auf:.
marfanhologrames.blogspot.com
MARFAN I SU NUEVO EP "CAPICUA" (2009)
MARFAN I SU NUEVO EP "CAPICUA" (2009). Domingo, 1 de noviembre de 2009. CAPICUA. Un recorrido entre códigos binarios y el diseño sonoro. 8230;i ahora que hago con mi tristeza…. 8220;Capicua” EP (2009):. 2 Ara que ja no ets aquí. 3 Orfes des desert. Ear: http:/ marfan.bandcamp.com/. Etiquetas: Marfan capicua hologrames shoegaze indie skarabat. Sábado, 8 de agosto de 2009. Marfan en perfecte simbiosi. Domingo, 18 de mayo de 2008. Marfan: Canciones en forma de pequeños hologramas. 07 Ni un trist adéu.