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Tall Like The Sunflowers

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe...

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Tall Like The Sunflowers | marfangirl.blogspot.com Reviews

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Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe...

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6 annual visit

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Tall Like The Sunflowers | marfangirl.blogspot.com Reviews

https://marfangirl.blogspot.com

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe...

INTERNAL PAGES

marfangirl.blogspot.com

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Tall Like The Sunflowers: A cancellation? Yes, I will take it! UPDATED

http://marfangirl.blogspot.com/2011/11/cancellation-yes-i-will-take-it.html

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. November 4, 2011 at 9:56 PM. OHI hope everything went well!

2

Tall Like The Sunflowers: Annual Visit

http://marfangirl.blogspot.com/2010/08/annual-visit.html

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Wednesday, August 18, 2010. Yesterday was full of nerves - the annual visit to Hopkins for B and G's checkups at the genetics clinic. The result of the 6 hours worth of doctor appointments - status quo. And I am just fine with that. With the kind of aorta damage that Hubby has.). I woke up this morning feeling so much better. We got through it - surgery #2. Is joining the fam...

3

Tall Like The Sunflowers: An Update More Than A Year Later

http://marfangirl.blogspot.com/2011/10/so-many-things-have-happened-since-last.html

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Wednesday, October 19, 2011. An Update More Than A Year Later. So many things have happened since the last post. Seriously, it has been the most eventful year of my life. Some amazing moments.like expanding our family with the most awesome baby boy ever! But also the scariest moments of my life.like when B almost died from internal bleeding. The Hubby's scary medical emergency.

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aheart4michael.blogspot.com

A Heart 4 Michael: October 2009

http://aheart4michael.blogspot.com/2009_10_01_archive.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Thursday, October 29, 2009. They are such awesomely sweet children! Actually, they are a really neat family! Links to this post. Tuesday, October 27, 2009. Prayer Request; Pneumonia and Staph. Tonja is currently in Missouri picking up their children and housing supplies. They have one...

aheart4michael.blogspot.com

A Heart 4 Michael: Michael's New Heart Photos

http://aheart4michael.blogspot.com/2009/11/michael-after-being-taken-off.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Tuesday, November 10, 2009. Michael's New Heart Photos. Michael after being taken off the ventilator. Taken the morning of November 10, 2009. Michael walking the halls after his shower. Subscribe to: Post Comments (Atom). Go to Michael's Facebook Page. Ava, Missouri, United States.

marfmom.wordpress.com

NEW WEBSITE | Musings of a Marfan Mom

https://marfmom.wordpress.com/2010/02/21/new-website

Musings of a Marfan Mom. February 21, 2010 · 11:13 AM. PLEASE UPDATE YOUR BLOG ROLLS AND READERS! THIS SITE HAS MOVED TO. Thank you so much for reading, and I hope to see you over at the new, self-hosted, site! One response to “. February 23, 2010 at 2:43 PM. Just stopping by to thank you for visiting me on my SITS day and leaving some blog love! Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Own Your Own Health.

marfmom.wordpress.com

Conference Recap | Musings of a Marfan Mom

https://marfmom.wordpress.com/2009/08/19/conference-recap

Musings of a Marfan Mom. Six Flags →. August 19, 2009 · 7:28 AM. Sat night a family from another country came to see me and I took them to meet some of the teens. It was the first time the son had ever met another person that looked like him. The father looked around at the teens in wonder and asked me How many years have these kids known each other? And prep for officially kicking off the weekend. I can’t think of a better way to get things started than by having Rick Guidotti from Positive Exposure.

marfmom.wordpress.com

My Life With Marfan, Part 3 | Musings of a Marfan Mom

https://marfmom.wordpress.com/2009/07/13/my-life-with-marfan-part-3

Musings of a Marfan Mom. July 13, 2009 · 10:24 PM. My Life With Marfan, Part 3. Previous installments in this series can be found. I had decided that my mission was to make sure 1) everyone knew about Marfan and 2) people with Marfan knew how to advocate for themselves, especially in emergency situations, so that no one would die of aortic dissections anymore. Impossible goal? Yes But, I’m only going to stop trying to reach it when I’m dead. Ran the teen programming back then. At first I was really n...

aheart4michael.blogspot.com

A Heart 4 Michael: November 2009

http://aheart4michael.blogspot.com/2009_11_01_archive.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Wednesday, November 11, 2009. A Big Boy Tray for Michael. 3:00 pm Update from Tonja; Michael has been up twice in a chair and is doing his physical therapy right now.ate regular food today. The nurses said he is doing AMAZING! Hugs and kisses to all. Links to this post. Michael sittin...

aheart4michael.blogspot.com

A Heart 4 Michael: Latest News- New Heart!

http://aheart4michael.blogspot.com/2009/11/latest-news-new-heart.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Monday, November 9, 2009. Latest News- New Heart! Today, I'll use this entry to add updates as they come in. Here are Tonja and Michael's address;. 2605 15th Avenue N.W. Rochester, Minnesota - 55901. Mary Brigh 5B room 514. C/o St. Mary's Hospital. 1216 Second Street Sw. To wean his b...

aheart4michael.blogspot.com

A Heart 4 Michael: New Home in Rochester

http://aheart4michael.blogspot.com/2009/11/new-home-in-rochester.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Monday, November 2, 2009. New Home in Rochester. Enjoy the Fall Mums from our garden. I apologize for the lack of updates recently. We've had flooding rains which required us to attend to our bridge. Subscribe to: Post Comments (Atom). Go to Michael's Facebook Page. Michael is a famil...

aheart4michael.blogspot.com

A Heart 4 Michael: Weaning off the Ventilator

http://aheart4michael.blogspot.com/2009/11/weaning-off-ventilator.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Tuesday, November 10, 2009. Weaning off the Ventilator. This is Tonja. She is one amazing lady. 12:00 pm Update from Tonja; Okay, Michael is off the breathing machine.he is thrilled! And "I want to eat, when can I get a tray".lol! A note from Michael's friends;. Michael is a family gu...

aheart4michael.blogspot.com

A Heart 4 Michael: A Big Boy Tray for Michael

http://aheart4michael.blogspot.com/2009/11/big-boy-tray-for-michael.html

A Heart 4 Michael. Our friend Michael, has Marfan Syndrome. He was medivaced to the Mayo 600 miles from home, and is in cardiac icu. Mike needs a heart so he can continue being an awesome father to his 4 beautiful children. Wednesday, November 11, 2009. A Big Boy Tray for Michael. 3:00 pm Update from Tonja; Michael has been up twice in a chair and is doing his physical therapy right now.ate regular food today. The nurses said he is doing AMAZING! Hugs and kisses to all. Subscribe to: Post Comments (Atom).

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Tall Like The Sunflowers

Tall Like The Sunflowers. Just a mom and a wife managing to keep it all together with a daughter and husband with Marfan Syndrome. Thursday, November 3, 2011. Yes, I will take it! G has been complaining the past few weeks about her legs. And her ankles. And then the other night, we were hanging out and I heard it - her hip cracks! Well, today is time. Well, tomorrow to be specific. Braces on her ankles? Who knows. Guess we will find out tomorrow. Wednesday, October 19, 2011. I have another blog - one whe...

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