4p-supportgroup.org
4p- Awareness Day
http://4p-supportgroup.org/fundraising/4p-awareness-day
Existing Member Update Form. Registry & Research. Our 2014 National Conference Sponsors. Photos & Videos. Donations & Fundraising. Ideas to Spread Awareness. You are here: Home. SHOW YOUR SUPPORT BY WEARING JEANS ON APRIL, 16TH FOR 4P-/WOLF-HIRSCHHORN SYNDROME! You can even choose a pair with a hole in them to symbolize the missing material in 4p-! And don’t forget to wear your wristbands and favorite 4p- t-shirt! 4p- Support Group (North America) www.4p-supportgroup.org. We ask that you join our Interna...
ssbpconference.org
SSBP 2014
http://www.ssbpconference.org/2014/index.html
The 17th SSBP International Research Symposium. Research Symposium 10 - 12 October 2014; Educational Day 13 October 2014. New York, USA. Bull; The SSBP. Tom Oppé Lecturer. Tom Oppé Lecture. If you can still read this message after the webpage has finished loading, then your browser may not be capable of using CSS to display this site correctly. Please view the website information. Page for further details. Don't forget that the deadline for abstract submission is 31st May 2014. Welcome to SSBP 2014.
aisiwh.it
AISIWH
http://www.aisiwh.it/index.php?option=com_content&view=category&id=26
AREA RISERVATA AI SOCI. Insieme possiamo fare la differenza. La sindrome conosciuta con i nomi di WHS, Sindrome di Wolf, Sindrome 4p-, Delezione del braccio corto del cromosoma 4. È caratterizzata da una parziale delezione del braccio corto del cromosoma 4. Questo sito vuole trattare la patologia dal punto di vista dei genitori fornendo informazioni generali, esperienze personali ed indirizzi utili. SCOPRI COME FARNE PARTE. Seguici su Facebook e sul nostro canale youtube. LEGGI LE ULTIME NOTIZIE. Li vedi...
kvtietopankki.fi
Wolf-Hirschhornin oireyhtymä – KV-tietopankki
http://www.kvtietopankki.fi/oireyhtymat/w/wolf-hirschhornin-oireyhtyma
Hyödyllisiä linkkejä. Wolf-Hirschhornin oireyhtymään liittyy eri elinten kehityshäiriöitä ja kasvun hidastuma, joka on nähtävillä jo sikiökaudella. WHS on todennäköisesti alidiagnosoitu maailmalla. Http:/ www.kvtietopankki.fi/syndroma/wolf. Harvinainen kromosomipoikkeavuus, keskivaikea tai vaikea kehitysvammaisuus, erilaiset laaja-alaiset kehityksen viiveet. On normaalia ohuempi. Virtsateiden rakennevirheet, pojilla mahdollisesti laskeutumattomat kivekset, sekä poikkeavuuksia hampaissa, kuulo- ja näk...
aisiwh.it
AISIWH
http://www.aisiwh.it/index.php?option=com_content&view=category&id=27
AREA RISERVATA AI SOCI. Insieme possiamo fare la differenza. La sindrome conosciuta con i nomi di WHS, Sindrome di Wolf, Sindrome 4p-, Delezione del braccio corto del cromosoma 4. È caratterizzata da una parziale delezione del braccio corto del cromosoma 4. Questo sito vuole trattare la patologia dal punto di vista dei genitori fornendo informazioni generali, esperienze personali ed indirizzi utili. SCOPRI COME FARNE PARTE. Seguici su Facebook e sul nostro canale youtube. LEGGI LE ULTIME NOTIZIE. Li vedi...
kianshope.weebly.com
Useful Information - Kian's Hope
http://kianshope.weebly.com/useful-information.html
About Wolf Hirschhorn Syndrome. Wolf Hirschhorn Syndrome Trust. To find useful information please refer to the above Trusts website: you will find useful contact information too . http:/ www.whs4pminus.co.uk/. Is a charity that funds research on Brain conditions and provides support to Parents, carers and professionals. Http:/ www.cerebra.org.uk/. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.
kianshope.weebly.com
Links - Kian's Hope
http://kianshope.weebly.com/links.html
About Wolf Hirschhorn Syndrome. Uk and Ireland Support Group/Trust. Http:/ www.whs4pminus.co.uk. Great North Run 2010. Http:/ www.justgiving.com/Madeline-Henaghan. Kian's journey http:/ kiansjourney-madeline.blogspot.com/. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.