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ZNM – Zusammen Stark! e.V. – Verein für zentronukleäre Myopathien

Family conference 2016 on May 7 near Frankfurt. X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. ZNM – Newsletter 2016 is now available – also in English! November 4, 2016. 8230; Read more…. Application for research grants now open! October 2, 2016. October 2, 2016. Is a small a...

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ZNM – Zusammen Stark! e.V. – Verein für zentronukleäre Myopathien | znm-zusammenstark.org Reviews

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Family conference 2016 on May 7 near Frankfurt. X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. ZNM – Newsletter 2016 is now available – also in English! November 4, 2016. 8230; Read more…. Application for research grants now open! October 2, 2016. October 2, 2016. Is a small a...

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ZNM – Zusammen Stark! e.V. – Verein für zentronukleäre Myopathien | znm-zusammenstark.org Reviews

https://znm-zusammenstark.org

Family conference 2016 on May 7 near Frankfurt. X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. ZNM – Newsletter 2016 is now available – also in English! November 4, 2016. 8230; Read more…. Application for research grants now open! October 2, 2016. October 2, 2016. Is a small a...

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znm-zusammenstark.org

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RYR1 – ZNM – Zusammen Stark! e.V.

http://www.znm-zusammenstark.org/en/ryr1

X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. Mutations in the gene RYR1 can cause sowohl autosomal – rezessive zentronukleäre Myopathie. As well as central core disease, ccd or multi minicore disease. The differences between CNM and CCD are explained in overview here. We are...

2

Living with CNM – ZNM – Zusammen Stark! e.V.

http://www.znm-zusammenstark.org/en/living-with-cnm

X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. Welche Hilfe gibt es? Auf dieser Seite und den Unterseiten tragen wir Informationen zusammen, die für den Alltag wichtig sind. Wir wollen euch aufmerksam machen auf:. Welche Hilfsmittel wir verwenden und weiterempfehlen können.

3

2015 in Göttingen – ZNM – Zusammen Stark! e.V.

http://www.znm-zusammenstark.org/en/2015-in-gottingen

X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. Dear families, therapists, doctors, nurses, friends,. From Friday June 5 to Saturday June 5, 2015 we had in Göttingen. 23 families from Germany and the Netherlands participated! E V (CNM -together strong! Up to now only in German).

4

Location and Accomodation – ZNM – Zusammen Stark! e.V.

http://www.znm-zusammenstark.org/en/2015-in-gottingen/location-and-accomodation

X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. Hannoversche Straße 51, 37075 Göttingen, Germany. Please donate via Betterplace.org. CNM - together strong! For a cure for centronuclear myopathies. Learn more and donate on betterplace.org. ZNM auf Social Media.

5

Become a member – ZNM – Zusammen Stark! e.V.

http://www.znm-zusammenstark.org/en/become-a-member

X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. We are very happy that you want to become a member of our association! You have two options:. Do you want to participate actively in our association and also attend the yearly meeting of members? CNM - together strong! Buy online ...

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mtm-cnm.org

Resources - MTM-CNM Family Connection

http://www.mtm-cnm.org/resources.html

Myotubular Myopathy and Centronuclear Myopathy Resources for Families. Links to resources, friends, collaborators, and partners in the journey. Get our email newsletters. Family Guide to Myotubular Myopathy. Click image to download pdf file). Written by parents, for parents, this is our community's "MTM 101". From our friends at CureCMD. Here is a comprehensive guide for care of all forms of Congenital Myopathy. (click image, then scroll down to "The Care of Congenital Myopathy: A Guide for Families".

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Websites » Myotubuläre Myopathie

http://mtmx.de/websites

Informative Videos zu MTMX bzw. XLMTM befinden sich in dieser Playlist auf YouTube. Der Blog meines Sohnes Philip. Das leben von Mael Alexander – leider verstorben. Gerne verweise ich auch auf Webpräsenzen anderer Kinder mit myotubulärer Myopathie. Deutschsprachiges Forum, das unter anderem auch das Thema myotubuläre Myopathie behandelt. Webpräsenz um Spendengelder für die Erforschung dieser Krankheit und der Identifikation eines Heilmittels zu sammeln. Kidsvision möchte insbesondere kranken Kindern helf...

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znm-zusammenstark.org

ZNM – Zusammen Stark! e.V. – Verein für zentronukleäre Myopathien

Family conference 2016 on May 7 near Frankfurt. X-linked Myotubular Myopathy (MTM1). Autosomal-dominant Centronuclear Myopathy (DNM2). Autosomal-recessive Centronuclear Myopathy (RYR1, BIN, TTN). Which help is there? Patient registry and studies. Downloads (Deutsch & English) & short films. Network of doctors and therapists. ZNM – Newsletter 2016 is now available – also in English! November 4, 2016. 8230; Read more…. Application for research grants now open! October 2, 2016. October 2, 2016. Is a small a...

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